August 1 Playing Guitar Hero with Bryan and Uncle Mark
Saturday, August 1, 2009
August 1 SETTING NEW GOALS
I left Tuesday to go back to work for a couple days and Lorne remained here with Travis. Nothing really new transpired during that time. However, at Clinic yesterday the doctor decided to drop the Tacrolimus (Tac) - (anti-rejection drug - Prograf is another name for it for those of you who have been asking) from 5 mg 2x/day to 4 mg 2x/day because of the tremors it has been causing. He/we feel that there is already an improvement today - we're not sure if the Tac is the reason - if it would make a difference so soon.
He was setting new goals for the weekend - one of which was to have a bath - however we noticed that one of the chest tube sites is still weeping a bit so that will have to be put on hold for a bit longer. Another is to break away from the hospital/hotel walls. He and his Mom plan to go to Southgate for a bit this afternoon and then to go to Bryan & Rachelle's for awhile this evening.
Travis and Cathie both went to the gym this morning - he upped his treadmill time from his 20 minutes at physio yesterday to 23 1/2 today. Good going Trav! He's also done some OT exercises as well this morning.
He has been having difficulty sleeping at night - it's becoming more of an issue every night so we will be addressing that at clinic on Tuesday. The bloodsugars continue to be out-of-range in the evening in spite of the changes they have made this past week so am hoping to talk to the diabetic nurse on Tuesday.
We hope you all have a great weekend. Thank you for your continued interest and concern.
Posted by Auntie Terri
I left Tuesday to go back to work for a couple days and Lorne remained here with Travis. Nothing really new transpired during that time. However, at Clinic yesterday the doctor decided to drop the Tacrolimus (Tac) - (anti-rejection drug - Prograf is another name for it for those of you who have been asking) from 5 mg 2x/day to 4 mg 2x/day because of the tremors it has been causing. He/we feel that there is already an improvement today - we're not sure if the Tac is the reason - if it would make a difference so soon.
He was setting new goals for the weekend - one of which was to have a bath - however we noticed that one of the chest tube sites is still weeping a bit so that will have to be put on hold for a bit longer. Another is to break away from the hospital/hotel walls. He and his Mom plan to go to Southgate for a bit this afternoon and then to go to Bryan & Rachelle's for awhile this evening.
Travis and Cathie both went to the gym this morning - he upped his treadmill time from his 20 minutes at physio yesterday to 23 1/2 today. Good going Trav! He's also done some OT exercises as well this morning.
He has been having difficulty sleeping at night - it's becoming more of an issue every night so we will be addressing that at clinic on Tuesday. The bloodsugars continue to be out-of-range in the evening in spite of the changes they have made this past week so am hoping to talk to the diabetic nurse on Tuesday.
We hope you all have a great weekend. Thank you for your continued interest and concern.
Posted by Auntie Terri
Tuesday, July 28, 2009
July 28 DOING WELL
Travis had a poor night last night - his back pain kept him awake a lot in the night - so he is very tired. We just got back from the hospital so he is trying to get some sleep now to catch up a bit.
At clinic today the doctor said that Trav is doing well. He did a bit of adjustment with his insulin and suggested Tylenol now to help with his back pain (his kidneys have not liked the Ibuprofen so much the last couple of days). He is quite hopeful that that will take care of it - if not they will try a muscle relaxant. Travis is a bit dehydrated so he going to get an IV this afternoon to re-hydrate him. I believe this is all quite normal for the course.
It is going well in physio and OT - such an important part to the recuperation.
Posted by Auntie Terri
Travis had a poor night last night - his back pain kept him awake a lot in the night - so he is very tired. We just got back from the hospital so he is trying to get some sleep now to catch up a bit.
At clinic today the doctor said that Trav is doing well. He did a bit of adjustment with his insulin and suggested Tylenol now to help with his back pain (his kidneys have not liked the Ibuprofen so much the last couple of days). He is quite hopeful that that will take care of it - if not they will try a muscle relaxant. Travis is a bit dehydrated so he going to get an IV this afternoon to re-hydrate him. I believe this is all quite normal for the course.
It is going well in physio and OT - such an important part to the recuperation.
Posted by Auntie Terri
Monday, July 27, 2009
July 27 BACK TO THE ROUTINE
Today was back to the lab for bloodwork, PFT's, chest x-ray, physio and OT. He was able to notice an improvement on the treadmill today - an encouragement for him (and us of course) - again we're so thankful for the one downstairs here.
Cathie left for Calgary this evening to work for a couple of days. It is so hard for her to leave here but is very thankful we're on this side of transplant - as we all are.
Posted by Auntie Terri
Today was back to the lab for bloodwork, PFT's, chest x-ray, physio and OT. He was able to notice an improvement on the treadmill today - an encouragement for him (and us of course) - again we're so thankful for the one downstairs here.
Cathie left for Calgary this evening to work for a couple of days. It is so hard for her to leave here but is very thankful we're on this side of transplant - as we all are.
Posted by Auntie Terri
Sunday, July 26, 2009
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