July 16 DR TALKING DISCHARGE

I found Travis sitting in his chair watching some TV with his Dad this morning looking quite bright. (He had already had a meeting with the Dietician before that). Shortly thereafter Dr. Lein came in and stated that he's looking at discharge on Monday. He also decreased the Prednasone again - Travis has noticed quite an improvement with his eyesight since he's been getting less.

Lunch followed and then it was down to Physio for another hard workout - they push him to his max. He did 10 minutes on the treadmill with less rest periods than yesterday. He's doing great in spite of back pain. Travis took half his 12 hr. pain med this morning so pain meds have been decreased quite a bit last 2-3 days.

We had a meeting with the Transplant Coordinator (Debbie) this afternoon to go over more drug information and some of what will be happening when he comes to join us at our 'new home'. We were both encouraged after our time with her - we felt she was very balanced in regards to quality of life versus living with this new disease (Transplant). As she said, you don't want to go through all of this and then be afraid to do things the rest of your life.

He is definitely getting more comfortable with the whole med thing but there's still a lot more to learn.

As I left from that meeting, Martha (OT) came in for another session with him. He had a chance for a small rest before I went back and then Jackie (transplant counsellor) came in to see him after which we took a walk, supper and then had a GOOD nap. We took one more walk and then it was time to sort 8:30 meds. He was tired but comfortable now when I left. He's looking forward to another good sleep tonight - he thinks he slept about 10 hours last night - best in a VERY long time.

Thank you all again. Things are looking good at this time!

Posted by Auntie Terri