July 17 DOWN TO IBUPROFEN!

What a huge blessing - he has been able to handle his pain well enough with Ibuprofen! - no narcotics today and what a difference - way less sleepy and mentally pretty well back to normal.
He thinks his vision is pretty well back to normal as well.

We had a session today with the Diabetic nurse teaching him how to take his blood sugars, to take his insulin and how to figure what he needs and when. He did great - took it all in stride and seemed to retain all the info which I would have thought could be quite overwhelming for someone the first time. He is now administering most of his own drugs, testing his own blood sugars and self-administering his insulin - it's been a huge learning curve this past week! The diabetes is a result of the surgery and some of the drugs he is on. We are hoping that this will correct itself, however most people with CF end up diabetic for life after transplant - another disease that has to be dealt with.

His PFT's were up again today - 48% (they were about 32% before surgery). He is looking and acting like himself again and is looking forward with anticipation. He is walking on his own and at a substantially faster clip than even yesterday. Every day this week has been a miracle!

Again they have added more at physio - he comes back from there exhausted but it's all positive.
There won't be physio or these other meetings happening on the weekend so we are hoping to venture further tomorrow - maybe outside if it's nice and we can find some shade where it's smoke-free. His Mom is coming back tomorrow night - I think she will see quite a change!

Posted by Auntie Terri