July 23 GETTING INTO A ROUTINE

Today started out with a long wait for blood work to be done (done every Thurs & Mon mornings first thing). One of the key reasons is to track the level of one of the anti-rejection drugs - we need them to get the reading back from it before he will know how much to take tonight and through the weekend. We believe that it is this particular drug that is giving him so much difficulty with tremors ie: very difficult to type, write and even affects his speech - it tires him quite quickly.

He had his PFT's done today and they still are on the rise.

Now to get out and get something for him to try and read. He says all of a sudden there seems to be more hours in the day but then he stopped to think of all the hours of inhaled meds and physio he's not doing anymore! He's watching some TV now but can't concentrate enough to play a game -- soon though we trust. He's anxiously waiting to when he feels good enough to do things WITH that time.

Personal note from Terri: I am so afraid that I have maybe left the wrong impression on a previous blog - I am so sorry. We were just trying to relay how especially difficult that part of the process was. I just want to reaffirm that we are all VERY THANKFUL for the unspeakable, amazing gift that Travis has received from a very giving, generous family in one of the most difficult, painful time of their lives - a chance for a NEW life. It has been a much more difficult journey than Travis had ever imagined it would be but is quite overwhelmed to even take in what it all has meant for many people.

Posted by Auntie Terri